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《Journal of Medical Informatics》 2016-07
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Problems and Thinking of Information Literacy Related to Rare Diseases

YANG Zhao-hui;Tianjin Medical College;  
The paper describes problems faced by doctors,nurses and patients due to lack of rare disease information,for example,difficulties in making a definite diagnosis and retrieving and searching information.It proposes relevant measures:popularizing knowledge of rare diseases,setting up a clinical information database of rare diseases,popularizing the online information exchange platform for rare diseases.Staff engaged in hospital information services should improve their work methods and procedures.
【Fund】: 天津市高等职业技术教育研究会2015年课题“高职院校学生个人信息管理实践现状分析与对策研究”(项目编号:XV468)
【CateGory Index】: R597;R197.323
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